Webinar: Federated real-world data studies and challenges
…real-world data studies and challenges by Dr. Pantelis Natsiavas…
CHILDREN_FIRST Network Webinar Series 2023
The Centre for Research & Technology Hellas (CERTH) cordially invites you to the second webinar of the CHILDREN_FIRST network on Federated real-world data studies and challenges by Dr. Pantelis Natsiavas.
Abstract: Along with the proliferation of the use of Information and Computing Technology (ICT) systems in health (e.g. Electronic Health Record – EHR, ePrescription etc.), the volume of relevant data has also increased dramatically. These data, especially if collected on a large scale, could be of significant value for very different use scenarios than those for which they were originally intended – secondary use (e.g. epidemiological studies, clinical practice quality assurance, policy making, drug safety signals identification, etc.). However, while in principle everybody could agree that these data could be valuable, still, exchanging Real World Data (RWD) is far from trivial as they are considered “sensitive” personal data. Thus, there is a number of legal, ethical, administrative issues preventing data sharing and thus data analysis. In technical terms, “interoperability” is a crucial issue as data exchange or federated analysis would require the use of a common data model (CDM). In this presentation, relevant initiatives are presented and challenges are discussed.
